Quotes about Angioedema
Scientists report that as many as 20 percent of HAE cases result from patients who had a spontaneous mutation of the C1-Inhibitor gene at conception. These patients can pass the defective gene to their offspring.
Patients with hereditary angioedema (HAE) are accruing specialty drug treatment costs of more than $300,000 annually on average.
Any soft tissue can swell, anywhere in the body. I never know how bad it will get. In order for the attacks to stop, treatments at the ER are needed. Many HAE patients suffer in silence.
Many patients report that their frequent and severe abdominal pain was inappropriately diagnosed as psychosomatic, resulting in referral for psychiatric evaluation.
The correct diagnosis and especially the correct treatment of hereditary angioedema is not always easy and requires a specialized approach.